Does this MRI go with my surgery? (Part 3 of 3)

So I went ahead and posted on my social media, letting my followers (and friends and family members) know that I’d be taking on another surgery. I added some kind of inspirational message – like I do – you’re welcome – and of course received an amazing outpouring of support. I am always so grateful.

 

I didn’t include the whole ‘I might have brain cancer’ angle, because I didn’t want it to explode into something more intense… my assumption is that most people made the assumption that it was something breast cancer patients normally do, to make sure the breast cancer was no longer in the breasts. Whatever they thought, I felt that I had to let people in on the surgery and MRI in general because it would be obvious when my physical appearance changed again, and that I was recovering from something. Or at least I thought this at the time, I realize now that my life didn’t appear to skip a beat.

 

The surgery was a complete success. It was quick, WAY less painful waking up, I went home the same day and had a much smaller incision site then I expected. It was such a small deal in comparison to everything else I had been through, why in the actual F didn’t I do this sooner? But, I didn’t know. Now I know.

 

I was back at the hospital the very next day for my MRI, which was also relatively quick and painless thanks to the subscription painkillers and really great care I always get in the MRI department. So now, all I had to do was wait for the results and this whole thing could be put behind me.

 

Or it’ll ruin my life.

 

Either or.

 

No pressure or anything.

 

I had a routine follow up appointment booked two days later, along with my usual Herceptin treatment in the chemo suite. Cancer life goes on friends…

 

I went into my follow up appointment expecting the usual things, and I knew I wouldn’t have my results yet because it was too soon. And that’s what I told all of my very impatient, yet loving friends and family who knew the whole story about what was going on. The nurse went over all my symptoms, took notes, asked questions and did her thing. Then she was reading off her computer screen and told me my MRI was clear, and continued to ask how is Herceptin doing…

 

Wait.

 

Pardon?

 

Did she just casually tell me between two other unimportant sentences that I didn’t have brain cancer?

 

I mean cool but, wait maybe she didn’t say that.

 

I interrupted her, and asked her to say that again, to make sure I heard right. The nurse clearly had no idea of the history leading up to this MRI, and didn’t think to go over it as if it was an important piece of information at all. It’s not her fault, I’m not saying it’s bad – it was just funny how unaware she was of the whole production.

 

So friends, point is my brain was a-ok.

 

Thank fuck.

 

I apologize for swearing, but sometimes you have to swear to really get your point across. I was so thankful, so relieved and sooooo incredibly ready to move the F on. With my new titties.

 

Which by the way, my new titties were smaller, more natural, a little odd looking, but overall much more comfortable. That in itself was a huge win for me. I still have another reconstructive surgery ahead of me in a few months time, to allow for the proper recovery from radiation, but until then I’ll be much more comfortable.

 

Side note – what once were boobs, became breasts with a cancer diagnosis, and then finally morphed into titties since they’re fake as fake can get. No breast tissue, no nipples, no sensations and no more of what they used to be.

 

They’re better. Because they’re not trying to kill me anymore, and well, I’m pretty happy with that.

More surgery, why the F not (Part 2 of 3)

Where was I? Oh yes, if the symptoms got worse, then it’s something we needed to take action on. My doctor also booked me to see a neurologist to get a second opinion.

 

Over the next few weeks I determined that the headaches weren’t getting better. The neurologist said he was pretty certain I was getting migraines (all day, every day) but he couldn’t be certain without an MRI. He wrote me a prescription to see if that would help, but those drugs typically take up to a month to have the proper effects.

 

I went back and forth on my decision to have surgery to get an MRI every. single. day. It became all consuming, even though I’d never admit that to myself, and in turn was causing me stress, on top of typical and atypical stress that was already a regular part of my routine.

 

Everyone I let in on the situation told me they’d get the MRI if they were me. I knew I wanted it, but felt bad for wanting it for some reason. It seemed silly to make such a big deal out of something I knew wouldn’t be anything in the end – is what I kept telling myself.

 

But.

 

What if.

 

I won’t even get into the back and forth I was doing in my head, because it was intense. But we as a people are not perfect – our ability to describe symptoms, describe what we’re physically feeling and to interpret how other people describe it all is not perfect. Technology is the only thing you can depend on, which in this case was an MRI.

 

So I made an appointment to see my surgeon to get his take on everything, encouraged by my oncologist.

 

Don’t forget – I am currently in radiation every single day while this is all going on…. So I’m a little preoccupied and busy!

 

That appointment set the stage for how quickly the rest of it would go down. We determined that I needed to get the surgery, I needed to have an MRI and I needed to put this to rest once and for all. It was obvious that it was stealing my peace and I needed it back. After all, I’m not being ridiculous, I had cancer, I’m in cancer treatment and I have symptoms.

 

The surgery wasn’t going to be a huge deal, and he’d fit me in right before the MRI appointment – whenever that was set. I appreciated the blunt truth and willingness to get this all done for me as soon as possible.

So I set the MRI appointment in motion, and got one in 12 days. So my surgery was booked for 10 days. Or something like that… it was less than 2 weeks for sure, which felt incredibly fast. But I could already feel the relief – not from headaches or other symptoms – but from the weight that had been weighing my down for months.

 

I spent the next week and a half exercising my butt off (I knew I’d need to take it easy again after surgery), cleaning and organizing our house (assuming I’d be out of commission for a while again), and when I told my friends and family about everything they were all ready to rally behind me again for any type of help I’d need.

 

Here I go again friends.

 

I knew it wouldn’t be nearly as intense as the last surgery, but I was nervous. Going under isn’t something I enjoy and I have to actively put my mind somewhere else when the nervousness sets in. I was also nervous about recovering, and any complications that might come up. We were putting a smaller implant into a space that was just home to a larger implant of different material – I knew it would be weird, for lack of a better word.

 

My husband booked off work, the kids were sent to grandma and grandpa’s house thanks to grandma also booking off work – and everyone was ready to help.

To operate or not to operate (Part 1 of 3)

The details behind my random last minute surgery a couple weeks ago are something I didn’t share very openly with people. Those who were closest to me knew what was going on, but other then that I didn’t share much.

 

This might seem like it’s not a big deal to some people – who in their right mind shares everything with everyone?! Well, me. I have been sharing all sorts of details with anyone who wanted to know ever since this whole journey began!

 

I’m mostly referring to social media. I’m also referring to oversharing with friends, oversharing with clients and always being the go-to person if anyone else had questions or needed guidance if they were about to go through a similar experience.

 

It’s one of my things, it’s what I do.

 

This was something I couldn’t share openly, for a couple of reasons. First, I didn’t want to make a big deal out of something that would likely not end up being a big deal. Second, I was starting to get tired of narrating my whole life on social media for everyone to read. I appreciate all of the support that comes from this sharing, but if I was getting kind of tired of it, then that probably meant lots of other people were getting tired of it too. Or at least that was the story I was beginning to build up in my head.

 

I know – who cares what other people think. It is so easy to say that, BUT I do care. I feel like am not supposed to admit that, but I do. So every once in a while it takes a little extra work, a little extra courage and a little extra wine to get back to what I know deep down is helping, and that is sharing to help others.

 

So here is more sharing.

 

HEADACHES. Let’s talk about being in my head about things – quite literally and figuratively. I started experiencing headaches before chemo was over, but along with all the other effects that come with it I brushed it off as part of the process, and knew it was temporary and would be over soon.

 

BLURRED VISION. I have glasses now. And it wasn’t until my second last chemo treatment that I realized my vision was no longer sharp, in fact there were times where I straight up could not see properly. It was consistently inconsistent – sometimes it was perfectly fine, and other times it was sketchy when I was driving… Again, it must have been chemo, right? Sure.

 

TINGLING. I was dealing with pins and needles, or numbness in my arms, legs, hands and feet – but mostly on one side of my body. This wasn’t as severe or noticeable, but it was there, and became more noticeable as time went on.

 

NAUSEA. I didn’t feel very well yet, but maybe it was the radiation… Oh wait, nope, it’s not the radiation according to my oncologist… so what is it? Why? It made no sense, except OBVIOUSLY it was the chemo still… sure, again.

 

But chemo had been over for a while now, and the symptoms weren’t going away. I finally remembered to mention it to my doctor and she immediately took it very seriously. In fact she was grilling me on my symptoms, which took me by surprise. She booked an MRI for my brain, and that was that.

 

But then I got a call explaining that they couldn’t give me an MRI because the expander (temporary implant) in my chest had metal in it, which made it impossible. My doctor was very frustrated by this, and then kindly began to go over her thinking process with me since I was still a little in the dark about what was really going on.

 

“Typically, for some reason that we don’t know yet, women with HER2 positive disease tend to experience metastasis to their brains – if it spreads.” Or something like that, I can’t trust my memory to the exact detail these days…

 

Oh.

 

Well fuck.

 

I see where this is going now. But I won’t think it, because no.

 

Her worry level seemed relatively low, but her desire to miss nothing and be on the safe side was the reason why I always felt like I was in such good hands. Plus my typical ‘don’t worry until you need to worry’ demeanour was kicking in, kind of like it did last year… you know, when they were testing a lump I found in my breast.

 

Yeah. You caught that too?

 

My innocence has been kind of ripped away from me on that one.

 

“When are you getting the expander out?” she asked. “Next year, in forever… like not anytime soon. Definitely not soon enough.” I explained. So now what.

 

I was booked for a CT scan, a similar but less detailed diagnostic tool to see if there was anything to worry about – and it came up clear. This was obviously a relief, but my doctor didn’t seem satisfied.

 

We decided I’d be on top of watching my symptoms, really focusing on the details of the headaches (which were every day, all day….) to determine if they were getting better. If they got better then it wasn’t cancer.

 

Oops, I slipped there and typed it out loud. Moving on.